Parents

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Moderator Comment by John on December 22, 2011 at 10:48am

I am sorry to hear about your daughter's child as well but very pleased to hear the care he recieved a Boston's Children's Hospital worked out well.

I agree with you and Syl. After I was diagnosed with ASD in Dec 2009, I did six months of hard core research on my case and who had dealt with a case like (blood disorder as well as ASD). I saw more than 10 plus cardiologists and 5 plus surgeons and e-mailed with many more. To make a short story long, I am convinced over the next 30 plus years people who are currently 10 to 45 will have heart issues that they never knew they had. Until recently, the technology to detect defects left a lot to be desired. I think everybody should have their heart checked. I can remember athletes dropping dead of heart conditions they never knew they had and others randomly surviving. I am convinced my theory will be proven correct about heart defects. I just hope people get tested now  and  their children when they are born. Look at a lot of us on this community. Many of us were detected later  in life or the kids.

Comment by Syl on December 21, 2011 at 9:34am

Wow...sorry to hear about your your daughter's child.  I feel the same way you do.  They listened for a heart mumur when I was young because my sister has one and they never detected one on me.  I had a stroke in 2010 and that's how I was also diagnosed with ASD.  The closure went well but I live with small (thank god) effects from the stroke.  I have my son's annual doctors appointment in January and I will push for them to check him.  I would feel so much better knowing for sure.

Comment by Ann C on December 21, 2011 at 6:44am

I have asked my primary care physician and every cardiologist that I have met during my journey over the last few months regarding having my children checked for ASDs and they have all said that it would be highly unlikely for it to be hereditary.  I'd like to believe that but I am still anxious that my kids could have an ASD.  They have listened for heart murmurs on them but don't feel that further testing is necessary.  They thought they may have heard a heart murmur on my son but said they will listen again next year and note it.  (They never heard my heart murmur until after I had a stroke.)  On another note, during my daughter's pregnancy this summer I pushed for the OB doctor to check the baby's heart since I have an ASD and the baby's father has a VSD.  They didn't and the baby was born with ASD, VSD and other significant congenital heart defects but contributed them to the baby having down syndrome (which they also didn't know about until after he was born).  All of his heart conditions have been miraculously repaired at Boston Children's Hospital and he is doing great now.  Has anyone else asked their doctors to have their children checked for ASD?  What are your feelings about it?