Alyssa's results

Comment

Comment by Julie DiMatteo on August 21, 2011 at 5:33pm

Thinking of and praying for Alyssa, you, and the rest of your family.  I know these are scary times for all of you.  I had my ASD closed via open heart surgery almost 15 years ago (age 18) - diagnosed in August and repaired in December, 4 months later.  I remember it was scarier for my parents than it was for me.  While open-heart surgery is scary in and of itself, the procedure is one of the most straight-forward of all open-heart surgeries.  In the end, it will all be worth it - Alyssa will live a healthier, stronger life with her repaired heart.  And, the best gift I was given besides my healthy, repaired heart, was a perspective to live by the rest of my life by.  If I have the courage and strength for open-heart surgery, I have the courage and strength to do anything.  Sending hugs your way!

Comment by bernardshuford on August 21, 2011 at 10:43am

Hope and pray everything goes well.  Get it fixed, regardless.  I waited far too long to get mine done, and it caught up with me badly.

Comment by Syl on August 20, 2011 at 6:51pm

I'm so sorry to hear this.  But stay positive! These doctors are wonderful and I am sure your angel will come out of this wonderfully.  She is in my prayers.

Comment by Syd01 on August 20, 2011 at 8:02am

Hi Alyssasmom
I wante to quickly drop you a note, as I had a slightly similar situation. While I only have 1 hole it was next to the valve as well. My cardiologist mistakenly told me he thought I would have to have surgery. It was once o started visiting the right surgeons that I was told my repair was an option with the Helex device - and even then only the 2nd surgeon I visited told me this option and had the specialist in helix (dr Kar)look at my case. I'm certainly not a doctor and don't know the implications of 2 holes vs 1, but just suggesting you consult a few drs. who are experts in the actual procedures. It wasn't until 4 months after I started seeing doctors (and 3 weeks before my procedure) I was finally told I didn't have to have surgery.