All Blog Posts (15)

Dear Friends and Family of ASDSurvivors,

As you well know, living with ASD can be very challenging not only for you but to your families as well. This organization was built with a view to helping you and your families to live up to this challenge by linking you up with people who share similar experiences and have succeeded in maintaining a positive outlook!

Explore more how our community had helped members face the…

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A heart disease can occur in any person. It can be genetic and can also be acquired during adulthood due to a lot of factors. Having a heart disease is never easy. There are a lot of things that you cannot do and some of your favorite foods can become a big no-no. At some point in life, we can say that having a heart disease is, perhaps, a bad luck. However, for a 5-year old Marty Viau, this is not the way it is. Despite having an Atrial Septal Defect since birth, he sees life so…

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ASD Survivors, Friends and Family,

As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like…

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ASD Survivors, Friends and Family,

As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like…

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ASD Survivors, Friends and Family,

 

We hope this message finds you well with high spirits and inner joy. We’re happy to inform you that our Atrial Septal Defect (ASD) community continuously been growing. And as always, we’re here to give strength and support.

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IN THIS ISSUE…

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Were you told that your child should get and ultrasound to make sure they don't have an ASD.  I was told it could be in the family.  I know I shouldn't worry too much but it's hard not too while waiting for an appointment.

Well it's been 10 months since my procedure!  Sometimes I still find this all so surreal.  I am still having almost constant chest pain, now I have  bradycardia recorded 39bpm one night, used to have tacycardia from atrial fibrillation and palpitations.  Still very aware of my heart and it goes haywire when I lay down to go to sleep making it difficult to relax. Beats too slow, beats to fast, missing beats, thumping... Needless to say I'm not getting a great deal of quality sleep.  Have an…

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First I'd like you all to know it's been almost a year since Michael's ASD surgery and he is doing amazing. He was cleared by the doctor today to play football this year and he now weighs more than me and also taller than me. LOL Such a blessing that he is doing so well. Anyway, the main reason I am posting today is because I'd like to get defibulators put in at the school. I have been reviewing the cost and proceedures to get this done and it is going to cost about 14 thousand dollars to…

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Hi everyone, we took Alyssa to the cardiologist on Wednesday hoping for the best case scenario.  Unfortunately, this is not what we got.  They did another echo on her and found another hole.  Because she has 2 holes and one is fairly close to a valve, they do not consider her a good candidate for catheterization.  We are pretty devastated but trying to act as normal as possible in front of her.  She will most likely have her surgery within 3 months. :(

So we took her back to the cardiologist on the 5th of August.  He could not hear any murmur with his stethoscope, which was excellent news since last time he could hear it quite a bit.  We did another ECHO just to see where everything was and to see if it had fully healed already or not.  It came back that now instead of having a medium sized hole she has a tiny size and we go back in 2 years.  Excellent news all around.

ASD Survivors, Friends and Family,

 

We hope this message finds you well, and that the first month of your 2011 was great. As always, we’re here for your support.

 

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Does anybody have any experience with coumadin?

If so, why did they put you on it?

How has it made you feel?

Thanks.

Hi, guess this site is very new as there is not much here yet. I joined because I'm hoping to connect with others with a similar problem to hear their experiences.



I'll start--I'm a 52 year old active female. I enjoy snow and water skiing, hiking, biking even scuba diving. However I am slooooowwwww. Always the last, just can't seam to catch my breath and tire easily. This was despite working harder and longer than my friends who went on to run marathons etc. when I never even reached… Continue

This community is all about helping. Helping yourself and helping others. Since many members have asked how they could help, we put together a list of ways you can help.…

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We have some important information we are happy to announce!

As you all know we run support networks for people affected who have a…

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