Frequently Asked Questions
New to ASDSurvivors.org? Here are some links to help you use the different features of the site.
Introduction to Photos
How do I change my profile photo?
How do I change the order of photos in a slideshow?
How do I delete a photo?
Add someone as your friend
How do I withdraw a friend request
Introduction to Comments
Comment on someone's profile page
Create your own group
Manage your group
Create your own event
Edit your event's information
RSVP to an event
Send messages to the members of your group
Introduction to Chat
Get to know the Chat bar
Can I set my profile to private?
Start your own blog
Edit your blog post
Introduction to the Forum
Add images or rich text to your forum post
Become an active member
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This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Autism
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
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Erythromelalgia
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Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Hepatitis C
Lupus
Multiple Myeloma
Myositis
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Blog Posts
February 2012 Community Newsletter
Dear Friends and Family of ASDSurvivors,
As you well know, living with ASD can be very challenging not only for you but to your families as well. This organization was built with a view to helping you and your families to live up to this challenge by linking you up with people who share similar experiences and have succeeded in maintaining a positive outlook!
Explore more how our community had helped members face the…
ContinuePosted by Ben Munoz on February 22, 2012 at 6:59pm
Wonder Boy: A Warrior at Heart
A heart disease can occur in any person. It can be genetic and can also be acquired during adulthood due to a lot of factors. Having a heart disease is never easy. There are a lot of things that you cannot do and some of your favorite foods can become a big no-no. At some point in life, we can say that having a heart disease is, perhaps, a bad luck. However, for a 5-year old Marty Viau, this is not the way it is. Despite having an Atrial Septal Defect since birth, he sees life so…
ContinuePosted by mary on January 29, 2012 at 9:07am
January 2012 Community Newsletter
ASD Survivors, Friends and Family,
As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like…
ContinuePosted by Ben Munoz on January 26, 2012 at 10:00am
January 2012 Community Newsletter
ASD Survivors, Friends and Family,
As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like…
ContinuePosted by Ben Munoz on January 25, 2012 at 10:00am
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