About Us
What is ASDSurvivors.org?
ASDSurvivors.org is a dedicated patient-to-patient support community for families affected by Atrial Septal Defect (ASD). ASDSurvivors.org is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with ASD.
Who can join ASDSurvivors.org?
If your family has been affected by atrial septal defect (ASD), consider ASDSurvivors.org your second home. ASDSurvivors.org, as well as the rest of BensFriends.org’s patient communities, is free for members to join.
What is Atrial Septal Defect?
Atrial Septal Defect (ASD) is a congenital heart defect characterized by the abnormal opening of the interatrial septum, the dividing wall or tissue between the left atrium and the right atrium. This opening or “hole” results to mixture of oxygen-poor and oxygen-rich blood in the heart, filling the lungs with too much blood to produce heart murmurs.
You can learn more about Atrial Septal Defect at Wikipedia.
What is BensFriends.org?
In 2007, Ben Muñoz suffered a rare form of stroke caused by an AVM. He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide patient-to-patient support communities for people living with rare diseases.
BensFriends.org is a network of patient communities for people living with rare diseases. Launched in November 2007, BensFriends.org provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives.
You can learn more about BensFriends.org at
http://www.bensfriends.org or watch one of our
videos at http://www.youtube.com/
Follow ASDSurvivors and Ben's Friends
Powered by BensFriends.org
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Autism
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Hepatitis C
Lupus
Multiple Myeloma
Myositis
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Blog Posts
February 2012 Community Newsletter
Dear Friends and Family of ASDSurvivors,
As you well know, living with ASD can be very challenging not only for you but to your families as well. This organization was built with a view to helping you and your families to live up to this challenge by linking you up with people who share similar experiences and have succeeded in maintaining a positive outlook!
Explore more how our community had helped members face the…
ContinuePosted by Ben Munoz on February 22, 2012 at 6:59pm
Wonder Boy: A Warrior at Heart
A heart disease can occur in any person. It can be genetic and can also be acquired during adulthood due to a lot of factors. Having a heart disease is never easy. There are a lot of things that you cannot do and some of your favorite foods can become a big no-no. At some point in life, we can say that having a heart disease is, perhaps, a bad luck. However, for a 5-year old Marty Viau, this is not the way it is. Despite having an Atrial Septal Defect since birth, he sees life so…
ContinuePosted by mary on January 29, 2012 at 9:07am
January 2012 Community Newsletter
ASD Survivors, Friends and Family,
As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like…
ContinuePosted by Ben Munoz on January 26, 2012 at 10:00am
January 2012 Community Newsletter
ASD Survivors, Friends and Family,
As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like…
ContinuePosted by Ben Munoz on January 25, 2012 at 10:00am
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© 2012 Created by Ben Munoz.
