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How To Make Our Community Easier to FindA member of our sister site http://www.ChiariSupport.org posted a tutorial on how to make our community easier to find on the internet by l… Started by Ben Munoz in GeneralLatest Reply |
Websites Detailing professional and amateur athletes and an actress' experience with ASDActress Kate Jackson - ASD Survivor http://en.wikipedia.org/wiki/Kate_Jackson Brazilian soccer player who underwent open heart surgery to… Started by John in GeneralLatest Reply |
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GeneralOpen discussion. |
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yesterday Reply by Jessi |
Gratitude/AttitudeA place to remind ourselves (Heros & She-roes) what we are grateful for and provide inspiration to others, with words, pictures, and creative writing. Simple words of hope and joy to manifest a healing of our spirits. |
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Sep 4, 2011 Reply by Syl |
Success StoriesA forum to share your sucess stories on any number of ASD related issues., to give the rest of us ideas and hope for the future. |
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Prayers & Healing Energy RequestsThe place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends. |
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Closure via Helex DeviceFor members who had closure via Helex Device, please share your story/experience. |
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Sep 8, 2011 Reply by Dannyn30 |
ASD Closure via Amplatzer DeviceIf you had your ASD closed via the amplatzer device, please share your story/experience here. |
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Feb 2 Reply by John |
PFO (Patent Foramen Ovale) & ASD (Atrial Septal Defect)For members and relatives with a PFO and or an ASD. |
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Closure via Robotic SurgeryIf you had your ASD closed via robotic open heart surgery, please share your story and experience here. |
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Musical DedicationsMusic to inspire ourselves. Music to inspire others. Music to dedicate to other members. |
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Laughter & HumorTake a break - if only for a few seconds. Laughter is good for the body, mind and soul. Get those endorphins moving around. |
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Closure via Open Heart SurgeryIf you had your ASD closed via robotic open heart surgery, please share your story and experience here. |
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Recommend a Doctor, Therapist, or Clinic (Positive Review Only)Want to recommend a doctor, therapist, or clinic? Positive review only, please. |
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Sep 2, 2011 Reply by Ben Munoz |
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Autism
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Hepatitis C
Lupus
Multiple Myeloma
Myositis
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Dear Friends and Family of ASDSurvivors,
As you well know, living with ASD can be very challenging not only for you but to your families as well. This organization was built with a view to helping you and your families to live up to this challenge by linking you up with people who share similar experiences and have succeeded in maintaining a positive outlook!
Explore more how our community had helped members face the…
ContinuePosted by Ben Munoz on February 22, 2012 at 6:59pm
A heart disease can occur in any person. It can be genetic and can also be acquired during adulthood due to a lot of factors. Having a heart disease is never easy. There are a lot of things that you cannot do and some of your favorite foods can become a big no-no. At some point in life, we can say that having a heart disease is, perhaps, a bad luck. However, for a 5-year old Marty Viau, this is not the way it is. Despite having an Atrial Septal Defect since birth, he sees life so…
ContinuePosted by mary on January 29, 2012 at 9:07am
ASD Survivors, Friends and Family,
As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like…
ContinuePosted by Ben Munoz on January 26, 2012 at 10:00am
ASD Survivors, Friends and Family,
As we begin a brand new year, envigorated with greater joy and compassion, we renewed our greater commitments to our community. BensFriends grew tremendously in the past three years, and we want to take this moment both to thank you and to make a promise to continue fulfill our mission: to ensure that everyone in the world with a rare disease has a safe place to go and connect with others like…
ContinuePosted by Ben Munoz on January 25, 2012 at 10:00am
© 2012 Created by Ben Munoz.